Hello!! (I hope you can make the time to read this AND PASS THIS ON TO FRIENDS, FAMILY AND AROUND YOUR PLACES OF WORK)
As you may know by now due to my blog, facebook and twitter (@PTNickyC) postings that myself and a few friends are competing in an event this year which will take us 208 miles through the alps of Germany, Austria and Italy.......oh and we're running it!!
We're down to the nuts and bolts of our preparation now as we're down to the last 25 days until the start of this mammoth task.
We weren't originally going to raise funds for chairty as we're doing this event entirey for our own "fun", yet it became apparent quite quickly that the one thing people kept asking us other than 'are you mad?' was in fact 'who are you rising money for?'
Aside from this charity page that I have set up, we also have one set up to sponsor the BHF (British Heart Foundation). So you may be thinking why is it that I have choosen Heart Research UK as well?
Here's my answer :-)
The people that know me well, know that I lost my Dad back in 2005. Reason being due to heart failure (cardiomyopathy).
During his care he had what is know as an LVAD (left ventricluar assist device) implanted into his body. This is a machine that is inserted internally allowing the blood flow that normally goes through your heart to be rerouted to go through the LVAD. The aim of this machine is to allow the heart to rest and possibly start to show signs of recovery within the affected areas of the heart.
If you have never seen this device attached to a person you don't quite get the full scope of what it is and the impact it has on a persons life, albeit trying to prolong it. The machines power source comes from either a machine you plug into the mains at home or by battery packs you're to wear.
In order to do this a drive line had to come from the LVAD and out through the abdominal wall of my Dad. It's a very invasive piece of kit to have but on the other side of the coin it is a genius piece of engineering.
The LVAD gave me the opportunity to spend precious moments with my Dad that I will always remember and be grateful for.
He showed immense strength of mind, body and character when he was going through his treatment, which is something I can only hope to emmulate come September 1st-8th during my event.
This continuing research will give other people and their families in the situation that Dad and my family were in, the opportunity to not only prolong their lives in the short term but make a full recovery.
Sadly I can't have this for my Dad but hold comfort in knowing that it could be possible for others.
If you are gracious enough to donate to this cause I would be truely thankful.
This has already been an emotionally and physically tough journey that I have embarked on. I have been a mess at times through this training but if my efforts and your generosity can help someone then it is all worth it in the end.
Nick http://uk.virginmoneygiving.com/NickCollinsHRUK
xx
Below I have added what any money raised from this would be going to.
Harefield Heart Science Centre
Dr Paul Barton, National Heart and Lung Institute, Imperial College London
Heart failure recovery
The research team at Harefield Hospital has developed a new treatment whereby patients on LVAD support also received heart failure therapy drugs – drugs that would normally not be given at this stage of the disease. This has led them to find that with the right drug combination certain groups of patients actually get better. Over two-thirds of patients with dilated cardiomyopathy who were enrolled into the programme responded well to the therapy. Over time their hearts started to work well again and following treatment it was possible to remove the LVAD and for them to return to normal life.
Little is known about how recovery of the heart occurs in these patients. In order to understand more, the team has been studying samples taken from the heart when the LVAD is implanted and other samples taken after treatment. They found a number of changes in gene activity which may contribute to the recovery process. However, a key question which remains is why certain patients respond well to treatment while others, with the same signs and symptoms, do not and still need a transplant. This project aims to directly address this question by using state-of-the-art gene expression analysis tools to look for differences in the molecular make up of the hearts of patients in these two groups. It is thought that identifying such differences will lead to a better understanding of heart failure. This will pave the way for tests to determine which patients are likely to recover and should therefore be considered for these pumps earlier. Also, the findings may contribute to the development of future drug treatments to reverse heart failure
Please view my donation page to assist the ongoing research into heart failure through Heart Research UK
My page: http://uk.virginmoneygiving.com/NickCollinsHRUK